Swapna kakani emory. Find contact's direct phone number, email address, work history, and more. She inspires people to defy all odds and to rise above their despair. Swapna went to school like her peers, succeeded academically, and aced her serve on the tennis court, all while wearing a backpack carrying her nutritional needs. Today, after 40 surgical procedures later, and waiting on a list for an intestinal transplant, they still don’t know what the future holds. Swapna gives inspirational keynotes around the country for the Sep 21, 2015 ยท This site is about living life to the fullest despite your circumstances and just simply, moving forward. Swapna was born with Short Bowel Syndrome (SBS), a rare GI disease, and received a small intestine transplant 10 years ago. Marketing Zovi · Experience: Zovi. View Swapna Kakani’s profile on LinkedIn, a professional community By telling my story I want to educate you, I want to advocate for change, and I want to inspire you to achieve your dreams. She is a graduate of Randolph School, and received her Bachelors in Psychology at University of Alabama at Birmingham. She has undergone several surgeries at multiple hospitals throughout the country. By telling my story I want to educate you, I want to advocate for change, and I want to inspire you to achieve your dreams. Experienced in fostering collaborative partnerships, program planning, needs assessment, patient centered outcomes research, state and federal legislative advocacy, healthcare policy analysis, and Swapna was diagnosed with Short Bowel Syndrome, a chronic rare disease, at birth and for 27 years has lived with supplemental intravenous nutrition and a feeding tube. The label “rare disease” includes more than 7,000 diseases and disorders. Rare Disease Project Valuing Rare Disease Treatments in Healthcare Rare disease includes a broad spectrum of chronic illnesses that can be progressively disabling and may negatively impact life expectancy. . She is a motivational speaker in the area of overcoming personal adversity and a health advocate for the rare disease community. Read More >> Twenty-Three years ago Swapna Kakani and her parents did not know her fate as a newly diagnosed newborn with Short Bowel Syndrome. View Swapna Kakani's business profile as Marketing at Zovi. Swapna Kakani gives the keynote speech at Asha Kiran's Ray of Hope Event. Swapna Kakani, MPH is an award-winning advocate, speaker, consultant, and researcher in rare and chronic disease health care delivery and patient experience. After being taken aback, Swapna started smiling because the backpack she was wearing carried her IV nutrition and she had to wear it 24/7 to stay alive. Swapna was diagnosed with SBS at birth and has lived on parenteral and enteral nutrition for most of her life. Dear Swapna: I am delighted you’ve been selected to be on this important panel. com · Education: Emory University · Location: Baltimore · 151 connections on LinkedIn. While each rare disease affects a relatively small patient population (defined as smaller than 200,000 […] Daughter of South Indian immigrants, SWAPNA KAKANI was born and raised in Huntsville. com. Interested in having me speak for your upcoming event? View many of my most popular topics and learn about the take aways of each here. I can’t readily think of somebody who will bring their everything to bear and be as impactful. In 2014, she received an isolated small bowel transplant. hoteuc bhckwva gfofz zmrydn gsiy vmiya skhj quixg yukw jrzm